Two years ago, my house was blessed to have the most precious (and I’m not biased in any way) little boy come into our home. His labor and delivery were brief (2 hours of labor, 3 minutes for delivery).
And when I saw him for the first time, I was stunned he was a boy (I’d really thought we were having a girl.) But, I thought he was perfect in every way.
I still cling to that thought every now and then. Now, I know he’s not perfect (he’s got the ornery streak to prove it!) And, I know he’ll never be the same as other little boys–not just because God made him different, but because of what’s different about him at a cellular level.
When I was growing up, I can’t remember having birthday parties. Sure, I had a girlfriend over most every birthday, or went to spend the week of my birthday (which strangely almost always fell over spring break) at my grandparent’s house in the Ozark’s of Missouri. But, I never really had parties that I can remember.
With Alexander, we don’t know how many years we’re going to get with him. He may grow up, have a family, and get to raise his own children, see his grandchildren.
I pray this is the case.
But, I also am all too aware that every birthday he has may be his last one. And, as a mother, this chokes me up. As I’m writing this, I’m crying, even though I can hear him and his sister in the next room, playing.
You see, his condition, Shwachman-Diamond Syndrome (SDS), puts him at a high risk of developing leukemia. I’ve talked about that before. Right now, until he has his next biopsy next month, we know he’s at an even more elevated risk.
And, should it come to it, and he requires a bone marrow transplant, I know he’s got but a 50/50 shot. We saw it with another SDS family just in the last few weeks. Their son had a transplant, and sadly passed away a few days later. He wasn’t much older than our little guy.
It scares me, more than I thought anything ever could.
So, on Saturday over the weekend, Alexander turned two. And, we celebrated, as we expect we’ll be doing not just with him next year, but with his older sister when she turns four in October.
While both of them can drive me nuts, and some days I wonder if it’s really worth it, something in the back of my mind reminds me that all of our days are numbered. Only God knows how many days we get. And even though writing my stories are important to me, blogging and social networking are fun and even important tools as I try to get the engine going on my writing career, there’s things more important.
Until next time,