Rare Diseases Day

Tomorrow, February 29th, is the 5th Annual Rare Diseases Awareness Day.

One year ago, I’d never heard about Shwachman-Diamond Syndrome.

Today, I live with its effects every day, and see its challenges in the face of my son.

Please help raise awareness. It’s not just cancer and obesity that creates health challenges. Rare disease–like SDS–together are just as common as cancer, obesity, and heart disease. But because the individual diseases affect only a handful of people around the world, you never hear about them–and few people fund research simply because they don’t know about them.


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