… and I don’t necessarily mean in a good way!
Since my son was diagnosed with Shwachman-Diamond Syndrome, we’ve known one of these days, he’d be having a bone marrow biopsy (BMB).
Well, it’s official. He’ll have one late next month.
This has left a lot of our family and friends with lots of questions, some of which we don’t know how to answer (and are fumbling around trying to at least sound somewhat intelligent when we respond.) Why does he have to have a BMB? Will he have to have it multiple times? Will he be sedated? How long will he be in the hospital? What are they looking for?
I asked my online support group about it, and they pointed me to these two resources:
Am I glad I asked! I think both resources answer more questions than even I’d thought to ask. 🙂
Probably our next biggest question is how long it’ll take to get the biopsy results–TMOTH has asked this, and I told him I had no idea, but we’d probably have results by Easter–let’s hope sooner!
More on health: our son’s doing better, and it’s been 2 weeks since he’s had a CBC (Complete Blood Count) run. We go back tomorrow for another CBC. We’re watching his hemoglobin slowly rise, and I’m hopeful it’s closer to the normal range. As an aside, our son isn’t the only person I’ve learned of in the last few days with low hemoglobin levels–a friend’s child was down to 6 last week (never heard for sure if the child had a transfusion or not) and a member of TMOTH’s family also had their hemoglobin drop and had to have a transfusion. At least I can understand the worry when it happens now!
Next week, I’m going to try to get back to a post on writing or some such thing. Maybe an update on those resolutions I wrote about a few weeks ago. (Hint: I’ve lost some weight, but have no clue why! I’m not exercising like I know I should be…)
Until next time,